Facebook grapples with rules for patients seeking organ donors

Officials at Facebook are exploring how to help patients in need of organ transplants use the social networking service to ask for help.

The functionality, which could go live by the end of 2013, would involve a default format intended to make it easier for patients to raise awareness of their plight while avoiding any hint of coercion or financial exchange.

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Primary care case study: Quality at every step

Before he even walks into an exam room to greet a patient, Kimberly, Wis., family physician Montgomery “Monk” J. Elmer, MD, already has a good indication of how the patient’s health is holding up. On a rainy day this spring, he had good news for Jim DeBruin, a jovial 79-year-old patient with diabetes visiting for a routine follow-up visit.

“So you’re still passing,” Dr. Elmer said as a smile spread across his face. In his hand, he held a printout of DeBruin’s laboratory test results, showing his glycated hemoglobin reading of 7.6%.

“As long as we’re under eight, you’re OK,” Dr. Elmer added. DeBruin’s blood had been drawn only minutes earlier by a medical assistant at the clinic, which is part of the ThedaCare health system in Appleton, Wis. The sample was analyzed at a lab on site at the clinic.

This just-in-time approach to lab testing and patient care is a principal example of how physician leaders at ThedaCare have earned an outsized reputation within health care for their widespread implementation of the so-called lean-management methods that helped Toyota Motor Corp. become the world’s biggest automaker. Although taking a manufacturing approach to medicine is most commonly associated with hospitals, ThedaCare is implementing the idea aggressively in primary care.

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How med schools will spend innovation grants

Chicago Teaching medical students by using virtual electronic health records. Embedding students in clinical care from their first weeks in medical school. Training tomorrow’s physicians to be leaders of interprofessional teams and deliver safer, higher-quality care. Giving students pursuing primary care the opportunity to speed their path to practice and averting dire physician shortages.

These are among the ambitious goals set forth by the 11 medical schools that won approval from the American Medical Association’s expert advisory panel. The $1 million grants awarded to each recipient over five years will give the schools the time and resources to implement changes that the AMA, physicians and educators hope will spark the biggest transformation of U.S. medical education since Abraham Flexner’s 1910 report set the standard for modern physician training.

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Summer weekend

While the weather dipped into unseasonable territory, it was nonetheless a great weekend for shooting.

First up is a set of pictures from our Saturday trip to rural Valparaiso, Ind., to visit old friends Jean and Judith for their “we’re still here” party. The couple had dozens of friends and relatives over to their wonderful country home to celebrate their 82nd and 86th birthdays, respectively. Here is just one shot of a nearby vista. Click the photo below to see that set of pictures.

Country life

And today, our friends Adam and Amy invited us to join their dog Gomez at the Praire Wolf Dog Park in Lake County. What a wonderful spot! Bob had loads of fun. Click the photo below for more.

Bob, his ball, and his shadow.

Redesigning the patient experience for safer care

Amid growing financial pressure to improve scores on patient satisfaction surveys, some hospitals are looking beyond the potential ding associated with low grades. They are working to redraft their approach to care in an effort to ensure that patients not only have a positive experience but also get the right care at the right time while being spared from harm.

This involves a variety of approaches, from relatively ambitious moves such as creating a senior-level position charged with improving patient experience to something as seemingly simple as asking patients about their biggest hopes, fears or concerns about their care.

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Mentoring project aims to increase minorities in medicine

A Web-based mentoring service launched in August 2012 has attracted 400 active users in its effort to help underrepresented minorities pursue careers in medicine.

The project, DiverseMedicine Inc., allows users to request a personal mentor to answer questions through the website’s instant messaging or video chat functions. High school, college and medical students also use discussion forums to cover topics such as admissions testing and residency applications.

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Photos from Midsommarfest

This is an annual street festival held in Andersonville. Despite the crush of people, it can be enjoyable for those interested in savoring a wide variety of overpriced comestibles, gewgaws and ear-splitting musical stylings. Anyhow, I took some pictures with my new camera. Click the photo below for the entire set.

A lot of face paint.

A note on language. One might think that Midsommarfest is a misnomer given that summer hasn’t even yet begun. Actually, midsommar is an important time in Sweden that does not happen in the middle of summer but at its start. (Andersonville was long home to a thriving Swedish population, but nowadays not so much.)

That having been said, Midsommarfest is still a misnomer because midsommar in Sweden is celebrated during the first week of summer — June 19-26. Midsommarfest in Andersonville, by contrast, takes place every year in early June. These pictures are from Saturday, June 8.

Research uncovers formula for enhancing informed consent

Informed-consent documents that are shorter and use simpler language, bigger type and graphics lead to dramatically improved understanding of risks and benefits, said a study posted online May 13 in JAMA Pediatrics, formerly Archives of Pediatrics & Adolescent Medicine.

Researchers tested various types of forms — some long and complex, some shorter and simpler, some with graphics and some without — among 640 parents of children scheduled for elective surgery. The forms were designed to deliver the traditional elements of an informed consent-document for the clinical trial of a fictional pain-relieving drug called Painaway. The parents were quizzed after going through the informed-consent process to determine whether they understood what was presented about the risks and benefits of trial participation.

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Serious work put into making primary care fun again

Amid alarming rates of physician burnout, hundreds of clinics nationwide are redesigning their practices with a goal in mind beyond improving the quality of care. They are aiming to make life as a primary care doctor enjoyable once more.

Twenty-three of these clinics are profiled in a report in the May/June Annals of Family Medicine that describes practice innovations that can ease the chaos, administrative overload, miscommunication and computerized busy work that too often characterize primary care. These clinics find that planning visits ahead of time, delegating more tasks to nurses and medical assistants, holding daily meetings and using standing orders for recurring items not only improves patient satisfaction but also creates happier doctors.

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State takes first-ever path to approve assisted suicide

Vermont in May became the first state to enact a law authorizing physician-assisted suicide through the legislative process.

After the bill narrowly passed the state Senate, the House passed the measure 75-65 on May 13, concluding Vermont’s decade-long political tussle over doctor-assisted suicide, which advocates call aid in dying. Democratic Gov. Peter Shumlin signed the bill into law on May 20.

“This historic legislative victory proves that the aid-in-dying issue is no longer the third rail of politics,” said Barbara Coombs Lee, president of Compassion & Choices, a Denver organization that advocates for legal access to doctor-hastened death.

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Cancer prevention: Jolie’s choice creates patient demand for tests

On the day that Angelina Jolie’s op-ed discussing her hereditary risk for breast cancer and decision to opt for a prophylactic bilateral mastectomy ran in The New York Times, genetic counselor Lisa Madlensky, PhD, checked in with her scheduler to see if the news had prompted patient inquiries.

“She actually didn’t have time to speak to me because she had all these calls backed up on the line,” said Madlensky, director of the Family Cancer Genetics Program at the University of California, San Diego Moores Cancer Center. “Finally, she put someone on hold. She hadn’t seen the news yet and she said, ‘What’s going on?’ ”

In the wake of the actress’s announcement, genetic counselors and breast and cancer centers are reporting similar increases in calls and visits from patients who want to learn more about being tested for the BRCA1 and BRCA2 gene mutations. The Jolie case shows the power that celebrities wield in driving medical care patterns by raising public awareness and tapping into the emotional connection that patients often form with the women and men who grace the covers of supermarket tabloids.

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Photo play

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Thanks to Elizabeth, I’m now the happy owner of a pretty powerful, yet compact, digital camera (read David Pogue’s review for more info). My sister-in-law Emily’s participation in the Soldier Field 10 Mile race on Saturday provided a good opportunity to give it a workout. Though I did not have a good enough view of the action to get any decent race photos, click here to see a few of the other shots I did get.

One neat feature is the in-camera effects. Below is the example of an effect where you take a photo and all the colors except blue are removed from the scene.

This camera setting spotlights the blue colors in a black-and-white photo.